Determination and the Will to Live

by ParentCo. November 06, 2017

new born baby in the hospital incubator

This is a submission in our monthly contest. October’s theme is Determination. In the mirror I could see the impossibly tiny blue foot sticking out of my abdomen, no bigger than an almond. I only glimpsed it for a moment as the doctor hurried to slide his large hand around the leg and reach for the body. But the tininess, and the blueness of course, alarmed me. Within moments the doctor was holding the smallest infant I had ever seen in front of me, briefly, before he was whisked from the room to be resuscitated. In my head a voice screamed, “Put him back! He’s too small! He’ll never make it!” When I awoke I was taken to see my son whom we’d decided to name James. He had been put on a ventilator and it was tougher than anticipated to see him on it. Every breath looked intensely painful. When he breathed in it looked as if his ribs were touching his spine. His whole chest would compress incredibly hard. It appeared that every muscle in that tiny two-pound body would tense and it gave the impression that James was experiencing acute pain. But James was born with two things that mattered: flaming red hair and the determination to match it. He was here to survive. He had Hyaline Membrane Disease which affects the lungs and makes it very difficult to breathe. Yet he fought every day determined to breathe on his own one day. He also required a blood transfusion but at two pounds they couldn’t find any veins large enough to use. Eventually they had to go through a vein right in the top of his head near the forehead. He didn’t like it but he tolerated it with his determination and will to live. Each week he experienced two steps forward and one step back. That sweet little baby struggled for over 60 days in the hospital before they finally released him to come home. Yet even with all the pain he experienced in the first days and weeks of his life James was the most sweet spirited child that anyone who knew him had ever encountered. He was a joy to his family. He was especially adored by his Daddy. He and his Daddy developed a close bond. They loved to read together, take walks, have “guy talks” and wrestle. For nearly five years they shared a great father/son relationship. That is why James almost fell apart when his Daddy died suddenly two days before James turned five years old. He had experienced a sudden stroke. No apparent reason. He was totally healthy and there was no family history of it. After the stroke they had done surgery to open the closed artery. We had thought all was well. He had hemorrhaged and within hours was declared brain dead. Then I had to tell James. I have never seen a child that upset. I’ve seen children cry. I’ve even seen children throw fits. I have never seen a child experience that true depth of sorrow. He cried so hard for so long we had to take his clothes off because he was overheating. Still, we wondered if he was fully comprehending the permanent nature of death. It wasn’t until after the viewing that I would understand what he was thinking. At the viewing I took James and his sister in with me to see their Daddy’s body before the guests arrived. After a moment James asked to be alone with his Daddy. I was hesitant at first and then agreed. After leaving him alone for about five minutes, he came walking out of the room with a tear stained face and looking exhausted. He let me pick him up and hold him and he rested his head on my shoulder. The next day when I asked him about it he told me, “I didn’t know if Daddy was really dead so I wanted to be alone with him. When you left I said to him, 'Daddy, wake up!' But he didn’t wake up. So them I took his hand to shake it. But his hand was very cold. So then I knew he was really dead. And then I cried and cried.” He waited until he was done crying to come out of the room to me. It seems to me that when James learned his Daddy had died for real that was a moment of determination for him. He had to once again choose to go on and live, to dry his tears, and put on a brave face for mom. That brave, sweet little boy by five years old had already twice in his life, both when he was a tiny two-pound preemie and as a five year old facing the death of his Daddy, shown amazing determination and a will to live!


ParentCo.

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